Ben threw up yesterday and today.  They tried Zofran and a few other anti-nausea durgs that haven't worked in the past.  Now Ben is trying a motion sickness patch.  The switched his IV antibiotics back to the pill form.  Last night the antibiotic IV bag came unhooked and spilled all over Ben's bed and the floor so they weren't sure how much of the dose he got.   Since he has been on antibiotics for over a week without helping, the Infections Disease people are wondering if there is some kind of fungus growing in Ben's sinuses.

Since it is 8pm and we are still here, I assume we are spending another night.  Since we signed the consent and the anitheseologist came, I assume the surgery is on.  I was told that Ben is last on the surgery list and it is 90% sure it will happen.  This time around there is a lack of information and/or conflicting information.  I know there is discussion on the team level and the nurses tell us what they know as soon as they know it.    Everyone has treated Ben (and me) with kindness and respect.

Thank you for the phone calls and gifts! 

Hello from Seattle!  After several people telling me how great Ben looked all weekend, Ben was admitted through ER yesterday afternoon.  Dehydrated, nauseated, with sinusitus and fluid in several joints.  Work is being done to push is sinus surgery date up, hopefully to the day after tomorrow. The Infectious Disease team came by.  They are looking to see if they can find a better antibiotic.  That will probably mean culturing what the ER doc gets during surgery for now he is being treated with two.  The sore joints indicate a flare but his blood work is stable so no one has made the official call.  We've seen Dr. Eddy and the Nephrology team and Dr. Stevens from Rheumatology.  There was talk of sending him home on the weekly MTX injections.

Ben isn't eating much but knows how to special order what he wants.  I got a coupon for a free pizza for testing out the wireless pilot program and he is looking forward to redeeming that on the way home. 

Ben is congested and throwing up but seems to be holding his own in the hydration department.  Children's Rheumatology and Otolaryngology both agree with what is being done locally (500mg Levaquin for 14 days).  

Between worrying about Ben and being excited about Baltimore I am having a hard time sleeping and studying.  If you want to check out what we'll be doing go to: www.wgassociation.org  We will have two days to tour the DC area.  Please let us know YOUR favorite must see attraction in Baltimore or Washington DC.

Ben is disappointed that the FBI tour is closed for renovations.  There is a spy museum that might make up for it. 

Ben has his sinus surgery scheduled for May 26.  It is normally an out patient surgery but since Ben is Ben, it will be an overnight deal.

The BIG NEWS of the day is...I received a birthday gift that will make it possible for us to attend the WG Symposium in Baltimore in July.  We are still in shock.  The next step is figuring out the particulars like exactly who will go and how many cases of Clif Bars we'll need.