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 October 19
 

Ben's fundoplication surgery consult date is set for the day before he gets his tonsils out (Nov.17, overnight stay).  We'll go ahead with the consult, even if we are doubtful about the surgery.  The next combined clinic visit will be busy.  Ben needs to have a bunch of tests every year (pulmonary function, echocardiogram, CT scan).  They are all scheduled for the same day. 

Ever heard of Ayurveda?  Older than Chinese medicine, it works to restore balance and harmony, resulting in self-healing.  (Sounds better than fundoplication!)  Doctors come from India to the island every four months or so.  We just missed their last visit at Earth Sanctuary, so I ordered a truckload of library books on the topic. Hopefully the books come after midterms.

School is going fine for me.  I hate being gone when Ben isn't well, but I hate online courses even more.  Right now I have a combination which seems to be the best compromise.  Ben FINALLY has a tutor, Kim, a wonderful lady who brings his assignments to our home, helps clarify any rough spots, and brightens the day. 

Posted by Pam & Ben at 12:05 PM - No Comments   Add a Comment  
 

 October 13
 

More details here: http://www.umm.edu/patiented/articles/what_surgical_treatments_gastroesophageal_reflux_000085_10.htm
Posted by Pam & Ben at 11:19 AM - No Comments   Add a Comment  
 

 October 12
 

You may remember Ben had a pH probe test done in May.  Today we found out, it showed SEVERE reflux.  The GI doctor said he as only seen a couple cases this bad.  In 24 hours a normal person will have less than 50 episodes of reflux.  Ben had 526.

The GI doc is going to consult with his colleagues and Dr. Emery to come up with a recommendation.  He said if the nausea/vomiting was a child's only issue, with these test results, he would not hesitate to schedule him for surgery.  But Ben has never been a simple case. The doctor scheduled a meeting for us with the surgeon and recommended going ahead with the tonsillectomy.

On the way home I was thinking about what how miserable Ben was when he was a baby.  Maybe he has been refluxing since he was born.  Thank God he has been on Prevacid the last three years, or he would likely be on his way to esophageal cancer.

As you can imagine we aren't happy that four months have passed with this information sitting in his file.  It is frustrating that Children's care is as good as it gets, and this sort of mistake still happens.  If you want to read more about the surgery, Google "Nissen fundoplication."

Posted by Pam & Ben at 7:19 PM - No Comments   Add a Comment  
 

 October 9
 

Maybe this is not a cold but the flu.  Ben has that bronchial barking cough and sweats and chills.  His dad is worried he won't be better in time for deer hunting. 

 

Posted by Pam & Ben at 12:05 PM - No Comments   Add a Comment  
 

 October 7
 

Ben went to Children's two days ago for hydration.  His veins are so spidery that his potential IV sites are limited.  Children's has an IV team that can almost always get him in one poke.  It was a "quick" ER trip;  he just got one liter. That made him feel substantially better (a 6 on the retchy scale). He has not vomited since.  It was nice because they gave him the liter and then asked what he thought.  Did he want more?  Did he want to stay?  It was also the first time we had been in the ER during regular business hours so the Child Life Specialist came to see him and gave him a stress ball.  Yesterday he started to get a cold.  Hopefully he can make it through without activating the vomiting cycle. 

We met with his 504 team yesterday and passed the management to the director of the school.  We went over the potential changes and I believe they will be accepted and implemented.  Ben has the BEST school and staff.  They are so kind and accommodating. 

Posted by Pam & Ben at 12:57 PM - No Comments   Add a Comment  
 
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